My Gluten-Free Project

I am starting a gluten-free diet to see if my lupus symptoms go away. Since 2010, my lupus symptoms have flared dramatically. I am at a loss and I am sick of feeling so awful. I have not had normal blood work for 2 1/2 years. I have microcytic hypochromic anemic. My ferritin level is 3. My complement levels are low. Almost everything is out of range, except for my thyroid levels. My thyroid levels are perfect!

I have read a lot about how lupus can be related to celiac. I feel like I am going in circles with my health. I get no answers from the doctors. I feel like sometimes there is no hope to feel better. I hate feeling this way and I don't want to continue living my life this way.

I have high hopes that some of my symptoms will improve. I will be documenting the experience as well as new and great recipes. I hope you will follow along with me in the experience. I am leaning a lot already. I am excited to share more with you.

6 comments:

  1. What kind of lupus do you have? Are you a mom? Because i saw it says mom writer website. How long have you had lupus? I have sle and have had it for 7 years. I have two children. I'm only 27. I've thought about going gluten free several times. I think it will help.

    ReplyDelete
    Replies
    1. Hi! Thanks so much for visiting! I am a mom of four children. :) I also have SLE. I was diagnosed when I was 15, but never had too many problems until I had my youngest child three years ago. I have been on the gluten-free diet for a week now. I am hoping it will help. What kind of symptoms do you have? T

      Delete
  2. I've had arthritis since middle school but officially diagnosed at 19. Arthritis, kidney disease, blood clots, and few other organ involvement. You? What kinds of meds are you on and how's the diet working out?

    ReplyDelete
    Replies
    1. I have had arthritis for a long time. I have had issues with pericarditis, brain fog, fatigue, migraine headaches. I am on plaquinel and something to control the pericarditis. I refuse to take steroids on a long term basis, but take short dose of them when things are really bad. I have hypothyroid too.

      I have been on the diet a little over a week. I do have a bit more energy! :) I still have my moments of worn out fatigue, but I was having that without bursts of energy, so I am excited! :)

      Delete
    2. I had pericarditis 7 years ago with pleuritis at the same time. It was bad. I've been on prednisone for 7 years, plaquenil, Coumadin for blood clots, celcept for kidney disease. What does brain fog feel like. I recently had headaches for two months. Why are you going gluten free? To get off meds? Are you lactose intolerant? Where do you get your gluten free info? Sorry I don't have many lupus friends so I have lots of questions. I'm from Ohio.

      Delete
  3. Awh gosh! I am so sorry! Brain fog is massive confusion. Going places and not knowing why- forgetting short-term things, even name of people who are close to you. I am sorry for your headaches! That is awful. I was just in the ER a couple weeks ago for a terrible headache. I get headaches weeks at a time with no relief. At least once a month.

    This is one of the reasons why I am trying the diet. I have sever anemia. My ferritin is 3. I have done a lot of reading and studying. Celiac is connected to a lot of auto-immune diseases. I am not lactose intolerant. I would like to go off meds eventually. I get my info online. There are a lot of websites and recipes online.

    Oh and I am from Ohio too! If you would like email me. gjs1198 @ msn. com :)

    ReplyDelete

There was an error in this gadget